I've been meaning to write for what seems like a year or two now. Life seems to just happen and get in the way-and the non essential things defiantly get put aside.
I needed to share my experience of whats been going on here at the Caughlin home this past week.
School has started. And oh what a joy school is. The battle starts at 6:30am and usually will calm by 8pm at night. (I understand this is a common household occurrence....and I sure hope you other mama's start your work day sweaty and frazzled like I do. Say yes, it makes me feel better.)
Seth just finished up soccer through the Parks and Rec. He LOVED it. He gained some friendships, which at 4, its pretty valuable and extremely cute! He gained alot of confidence in this short time.
One thing we noticed is Skyler was really wanting to do something. mostly cause I think he saw Seth got to be in the spot light and naturally Skyler would like to be in one as well. He got sad when I told him soccer wasn't for him
(no contact sports for that cute blond boy.)
So that night I went searching the Internet for safe, fun things for Skyler to participate in. We did t-ball a few years ago. He's obviously too old for that at the age of 9, but not able to play baseball due to the vision disability. That's when I discovered Special Olympics Bowling League was starting in less than a month.
PERFECT!
Now whether this would be for him or for us, we will find out in the end. But we enrolled him. Signing up for the Special Olympics is easy, yet requires some paper work you must convince your dr you need as soon as possible. (along with the permission slips for medications and plan of care write up needed ASAP by the school nurse) which NEITHER is an easy task. I am thankful they didn't require us to be seen, they could just go by last dr visit for vitals.
So Skyler was going to be on the team. He was going to bowl! Which is great cause we had his 9th birthday party at the bowling alley! He LOVED it! As small as the kid is, he can sure pack a 7-10 lb ball around like nothin'.
First Day of Practice
We show up the bowling alley 10 min early. Seth and Skyler and I are all excited to see what the next 2 hrs bring us.
I walk in to find chaos, pure chaos. I find the gals who are in charge and plan to get Skyler signed in and set up in his lane. With his anxiousness he begins the questions of where are we? to what are we gonna do? followed by can I play when we get home? Between him and little Seth overwhelmed with everything around him I hear the lady tell me "sorry we don't have his paperwork" as I try and explain to her that I dropped it off at her work and she probably should look one more time because the time bomb holding on to my left hand was about to go off any moment....3, 2, 1 BOOOOM!
It's over.
We now have completely melted down. As I am trying to dry tears and calm voices we are shuffled off to the side so people can continue to pay and begin to play.
I'm also realising that I have just been handed a very large dose of reality. This really isn't what I had in visioned and I know absolutely no one. I want to explain something. I have been exposed to alot of different situations and ranges of disability. In fact I find comfort in talking to other parents while waiting for clinic appts at Children's about their child's strengths and difficulty's as it helps ME better understand my child and our situations as much as becoming more versed and understanding of others around me. Having a child of our own who has so much going on medically, behaviorally and cognitivly I'ld like to say I am very accepting and understanding And what I thought desensitized.
This wasnt the case in room full of developmentally disabled adults. Its not fair to judge, and I promise with all my heart I wasn't. As I look around I see worn down, tired and ragged moms. Me, in 10-15 years from now. I see Skyler. I see a future that is already been paved and is waiting us. This is not what I had planned. But this IS my life. How have I never until now, been exposed to what our future will be like as parents of a child like Skyler. In my eyes, he is perfect, funny, adorable and witty smart in many many ways. And as a mother you never really look at your child is different. And we try very hard to make sure Skyler has all opportunities like other boys and girls. Yes he is different but he is capable. (I'm blaming Denial here)
Maybe its cause I knew no one and they were so unorganized that my first impression was tarnished with the Special Olympics of Skagit County. I was done. This wasn't for us, Skyler is too young. We aren't "those" people. IM not ready yet? And they cant even keep paperwork in order. I was just going to find something else.
Something tho, made me email the director on Tuesday. I asked if she had found Skyler's paper work. She quickly responded yes and that we were set to participate on Thursday. I battled with myself. Do I take him. Do I "quit" and hide? No-I couldn't do that. Its reality I am afraid of. Its truth. I need to get out of denial and embrace our son and know that its OK and a here and now thing.
Off to bowling we went. Skyler was VERY excited. And today it didn't seem so bad walking into a room full of- well people. I saw smiles and warm greetings. I think Skyler got 10 high fives as he joined the group. Instant acceptance.
What was I afraid of?
To make things better, I turned around and alas! A familiar face. I had met a lady who has a 20 year old son who is blind and has similar developmental delays and behavioral tendencies like Skyler. We have swapped bits of our stories but never really talked. She and her son P were there. I instantly felt relief. I wasn't alone anymore. We sat and shared more stories (I was taking mental notes because she has got 10 years experience on me!!) I thanked her for coming. Our boys got along great...2 kids obsessed with Ipads! uh oh.
Skyler made many friends today.
He has a tendency to wrap himself around every persons heart he meets. Hes amazing.
One thing I learned today-
Take a moment and smell the flowers. Its not that bad.
I was absolutely terrified last week. I felt out of place, overwhelmed by reality
and that this just wasn't for us. When in fact, its exactly where we needed to be.
I may have learned a lot in the past 9 years. But I have so much more to learn.