It sure was a shock to be more than halfway down to visit Skyler yesterday and get a phone call from mike saying that Skyler will be discharged before noon! Like I say , that NEVER happens! But there is a first time for everything! He was just doing too good to be cooped up! So after we got all things packed up and learned what we needed to learn, Skyler wanted to go back down to the playground and play! Silly kid! But it was a beautiful day out! So it was ok, nice to be free but also gave us a little glimpse on how our clumbsy child would be and incase in that small time frame something happened we were right there (yea I was nervous!)
It has been nice to be home and have us ALL sleep in our own beds! Skyler did very well yesterday afternoon. We had some errands to run since we had NO food in the house and no food processor, Skyler has taken possession over it, its his and that is that! :P By the time we got home you could tell that the few errands we ran were enough to poop him out, he was leaning his head on the shopping cart and all, so even tho he's got his brave tough face on, it still shows he's not 100% (mom knew that!)
My mom and dad brought over pizza for us, and yes it went threw the processor, and yes Skyler LOVED it *its ok to cringe, I did* He never complained about pain and when it came to bed time and our routine the hardest part was convincing him why a cookie wasn't a good idea as a reward for going potty. But pudding worked just as well.
We were on day 3 of turning the screws, my first time. I'll tell ya the truth, I would be a nurse if it wasn't for the whole giving shots into solid things (people) and turning the screws kinda fell into that category...the resistance was a bit of a shock at first, but he didn't flinch and so that was what made it easier on me.
He slept all night with no issues and was up and going at 7:30 am! And we turned again, with no problems. Scheduled our first post-op appt for this up coming Thursday at 9am. they might be doing x rays to see if they can tell any progress. I think that day I will do some photos, because now we have made some turns but too the naked eye it won't be enough to tell any changes yet.
Still working on nursing so we can have some help around here with care and maybe get things back to "normal" but since Skyler has been doing so well, here and at the hospital, we may have to deal with no nursing support. Our insurance plan doesn't include that option, but we are trying to appeal (story of our lives) and get some 10 hours a day so that I may go back to work. Skyler doesn't belong in day care at this point. I just wish there was an easier way to do it all. I am waiting on a call from our social worker today. I have explained to them that by not wanting to flat out say Yes Skyler is ok at home, doing well no issues, but really I just need a very expensive nanny?? yea, insurance says yea right.
All right enough rambling. :) I know it won't be too long before this is all behind us. June 6th is our last day of turning, and then its 4-8 weeks of healing. Let the count down begin!
~Casie and Family
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