Another lengthy delayed update on the family. Where shall I start?? How 'bout right about mid August...
Both the boys had birthdays. Skyler 08/21 and Seth 08/24. It was INSANE!! We were able to find a inflatable water slide to rent and set up in the back yard and had a water party for them! There were so many little boys running around our house (+5 little girls, but they were totally out numbered) So besides the party, we did CHUCK E. CHEESES, the Zoo and all around made the boys weekend specatular, it was fun.
Although it seems this time every year I reminise about the past we had with Skyler. Seth has been such a breeze that I often compare them, at certain points I can tell you that the stage development Seth is at now, Skyler was far from, and how weird it is to look at pictures and see kids the exact same age but sizes, personalties are so much different. Skyler has come so far its incredible.
We were still in the hopsital at this point with him, he wasnt even trached yet (which btw...Septemember 20th is his anniversary) So much was still a mystery with Skyler that being able to have him be 7 and active makes things so much more easier to accept. (on the good days)
We also went the waterslides...yea, we took our son who is trached to the waterslides :P he did amazing! (hes capped, so its not like he inhaled gallons of water) his favorite ride was the River raft ride, and then he decided he would rather play bouey in the wade pool. The kid is a fish! Seth loved the little kid water slide. Fearless.
Skyler had his first day of school!! We have an amazing set of teachers this year. I am so thankful for them (its early in the year I know but I just have this feeling!) We have already had more communication and contact with the school this year compared to last and its ONLY the 2nd week of school! He did have to repeat kindergarten this year, and I have yet to fully except it, but I am becoming more fond of the idea (like I have a choice in it anyway) This seems to be a good decision. Skyler WILL full fill all expectations of him for a succesful acedemic experience, I just know it.



Seems like its all about Skyler this note, tho I guess it was all started because of him. And simply put...no news is good news. And Seth seems to be doing great. He dodged shots this week...but we will get him next week. (poor boy) Hes starting to become a champion climber, we were just saying last week or so how lousy of a climber he was, short legs are not very helpful. He is spitting out new words daily, its nuts! He is always putting smiles on peoples faces. I love that my boys are charmers.
And sadly we had to have Skyler back in the OR once more on September 11. He had the last of the hardware that was in his jaw bone taken out. 1 night over in the hopsital and we got to see all of our nurse friends. Yea, they even just came in to say hi. Some had heard he was in patient and hunted him down. Friends for life I guess. But he is swollen and a bit sore, but nothing that wont heal. Dr Egbert confirmed with me Friday night that he will not be a candidate for Decannulation in the Spring (trach out) as he is for certain that the surgery tho we did get a bit over 5mm, it simply wasnt enough to take care of the airway issues. Sad, but we knew the risks that it "might not" be what he needed. Just put in reality...So they will go back to the drawing board. But I think mike and I are on the same page that we really dont mind the trach...well not all complty true, its tolerable enough that our little man doesnt need to be under anymore. I feel like the poor kid is ALWAYS being poked and picked...so till he grows, say 10lbs more...ha ha...we will see like in 5 years right?
I supposes that is it. Mike and I are doing well. Trying to find ways every once in a while to get out and enjoy one another kid free. But as you all know, that is easier than it sounds. He is working full time plus some in Seattle, he came home the other night with a T shirt on that said TEAM MEDICINE on it , for the Virginia Mason add on. but its a bright orange construction shirt. (hes so cute!) An I am back at work, have been full time since July. Yea me!
As more exciting news comes up I will post more, but till then we will be mellow fellows but feel free to comment on us :)
As more exciting news comes up I will post more, but till then we will be mellow fellows but feel free to comment on us :)
All our love
Casie and her boys!
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