The last few days have been sorta uneventful. It's been a little frustrating actually. Haven't talked to the dr since, er what day is it.?..ok so haven't talked to the dr since Tuesday am. The day AFTER x-rays. And honestly I don't even know if everything is still going ok. He is making us wait till Friday for another set of x-rays to see for sure if something is broken on the Left side..you got it the surgery date of June1. ((Frickin figures!!)) I really don't know and have been trying to to worry about it too much the past few days, which is probably why I haven't posted an update on Mr Man because it only makes me sad. Sad to think all of this a waste, the past 2 weeks trapped in here was for nothing since IF the left side is broken they won't fix it and we will "re evaluate" next year. Which in our minds next year we were HOPING to have an answer on when Skyler's trach could come out. I've tried to be strong, and sane, and open minded about it, but really....it just wasn't in the plan. I have talked to a few people about it and they have given me some advice like I don't even know for sure yet. But WHY would the dr say something, and then make us wait to know for sure!??!! Cruel don't ya think? Skyler's bones are just too fragile right now, which I suppose wasn't brought up as a risk to us. This never was in the "what ifs" and what could happen. So now I have been keeping Skyler trapped in the room as much as possible because I have been trying to talk to the dr for the past 3 days! We have missed him once, another dr from the clinic came down yesterday to let us know they hadn't forgetten about us (normal rounds are twice a day....but the resident that has been helping the dr last day was monday and since then communication hasn't been great) My goal today at 8am when they were supposed to be here was to ask to go to dental clinic for a panoramic x ray, for precise accuracy...not the radiology lab down stairs. But since it is a clinic day over there and the fact its almost 10am and I haven't seen them yet, chances are we will have to wait till tomorrow.
Tunring his pins haven't been bad. Friday night was when we bumped up tunring the left side 2 times in am, because dr had told us that it was close to healing and almost done and we wanted to get ahead of the game...now that I think about it, we had x rays done that Thursday and then they had sceuduled x rays for the monday following. I questioned it, if they thought there was an issue, "no no issue, just keeping close eye on it" so then on Monday after the x ray our nurse told me there was an order put in for Friday x rays, that really sparked my interest. Another one so quickly. so that is when the battle of getting ahold of a dr to tell me what the heck was going on and I ended up talking to someone who had NO idea what he was talking about.."oh x rays look good, haven't seen them, but sounds like all is well..." then the next morning dr E shows up and tells me otherwise.
I really don't like being left in the dark.
So all of this has turned into more stress...say it did break. The pain suffering and nerve damage we put Skyler threw, for nothing...the last month of school missed, (Which btw, I told the special ed director last tuesday her program was HORRIBLE...no joke. I was proud of myself...then i cried. :P She came back with "well I thought I was doing you a favor by allowing Skyler in our district this year" I told her I did too, and appreciated it until I relised her program stunk. Made me feel better for a moment.) Not to mention the seperation of our family, Seth has been in mine or mikes care for maybe 4 days total threw all of this. And the stress of not working much for the past 2 months. It stinks. And really, we regret doing this. What do they say "No use crying over spilt milk" bah!
On another note, found out if your here for a certain time someone is kind enough to recommend volunteers for you :) Skyler played for an hour yesterday with a gal in the play room. I got to have a cup of coffee and read up on the trashy magazines in peace and quiet!! It was nice, yet weird to not be with Skyler for the short time. He sure is getting sassy, yet starting to be a voice for his own needs. I can't believe he is almost 7, sure shows from time to time.
Our nurse today had Skyler for a few days when he was 3 and had his tonsils and adnoids removed. She didn't recognize him, but recognized me! that is weird.
Well that is enough ranting, venting for the day. Thanks for listening, its sorta theraputic :P
Please keep Skyler in your thoughts. Pray that the radiology techs take bad x rays and this is all a worry for nothing :) If I dont see dr today I will for sure post something tomorrow.
All our love
Casie and Skyler
I really don't like being left in the dark.
So all of this has turned into more stress...say it did break. The pain suffering and nerve damage we put Skyler threw, for nothing...the last month of school missed, (Which btw, I told the special ed director last tuesday her program was HORRIBLE...no joke. I was proud of myself...then i cried. :P She came back with "well I thought I was doing you a favor by allowing Skyler in our district this year" I told her I did too, and appreciated it until I relised her program stunk. Made me feel better for a moment.) Not to mention the seperation of our family, Seth has been in mine or mikes care for maybe 4 days total threw all of this. And the stress of not working much for the past 2 months. It stinks. And really, we regret doing this. What do they say "No use crying over spilt milk" bah!
On another note, found out if your here for a certain time someone is kind enough to recommend volunteers for you :) Skyler played for an hour yesterday with a gal in the play room. I got to have a cup of coffee and read up on the trashy magazines in peace and quiet!! It was nice, yet weird to not be with Skyler for the short time. He sure is getting sassy, yet starting to be a voice for his own needs. I can't believe he is almost 7, sure shows from time to time.
Our nurse today had Skyler for a few days when he was 3 and had his tonsils and adnoids removed. She didn't recognize him, but recognized me! that is weird.
Well that is enough ranting, venting for the day. Thanks for listening, its sorta theraputic :P
Please keep Skyler in your thoughts. Pray that the radiology techs take bad x rays and this is all a worry for nothing :) If I dont see dr today I will for sure post something tomorrow.
All our love
Casie and Skyler
No comments:
Post a Comment