It truely has been an adventure

Yes we are home. How did we manage that...I have NO idea!! The past few days had been very frustrating and drug out, I was unable to get a clear answer from really anyone who had that knowledge, or even talk to the dr for that matter! We had crossed paths a couple times, or they just were too busy to come up to the floor to see us. *sigh* But finally yesterday at 1pm I got a call from Dr Egbert who called to tell me the charge nurse wanted to move Skyler from the surgical floor to another floor as they needed our single bed (the chance was we were going to have to have a roomie, that is never fun!) I had told him fine but also asked him if we could "tomorrow" go to his office for the panorex x ray (its the panoramic x ray) to get a clear more accurate answer. He agreed that would be just fine. So that made me feel a little better, hung up the phone and not 5 min later his scheduler called me and asked if I wanted to come TODAY before 3pm for the x ray. We jumped on the opportunity and were there by 2.

Once the x ray was done the gal brought it to me to see, it looked good to me, I was wondering to myself what the heck they were so worried about, there was great separation between the jaw, it looked like a great amount of growth!

So what you are looking at is the side with the shorter rod in it is the LEFT side and you can see on the last set of Molars in the pic underneath is 5 screws and then the gap which is new bone growth and then in the far back you see another set of dots (supposed to be 5 - 6 screws there) I cant tell how many are there actually, but apparently they are loose and not connected to the bone any more. The growth seems to be stable but as the other side continues to distract and push his lower jaw down and out, it will go off to the left side some because there is no more resistance pushing the LEFT side into it and down...so that is where the dr got the "its broken and we cant fix it until next year" in my mind, it was the whole thing was for nothing and tough luck...you know "worst case scenario".
But the LEFT side is done turning. The pin is so small it actually is digging into the skin as it gets turned each day, so no more turning. The RIGHT side (the longer rod in the picture) is almost done. We will have 1 more photo opportunity done on Thursday the 2nd and then we are scheduled to be D-O-N-E with turning on the 6th of July and the rods will be taken out. The bars connected (or not connected completely) to his lower jaw will be left still as the bone completely heals and hardens, that will be taken off more towards end of August or early September.

As for how we got home...the dr felt sorry for us?? I really don't know. We were being good and not asking about it, the nurses were moving us out of our room after 3 yesterday, so maybe he just figured it was time. As long as I sat on him at home :) So we will see I am nervous that something will happen (who wouldn't after all of this?) but I really am hoping that that little tiny dot I see is the "light at the end of the tunnel" ... either that or I need to go get checked for glaucoma...

All right time to go unpack, do you know that in 13 days you can accumulate ALOT of stuff?
Thanks to everyone who sent messages to Skyler in his room, he thought that was pretty cool. And also the visitors we got! Was sure nice to talk to people who knew us, and didn't wear scrubs.
We love you all!!
All our love
Casie Mike Skyler and Seth