Another "What the heck!!" Moment...

So surgery went well, it went a little over 2 hours, and actually they told me it should be an hour and 15 min, but then after 2 hours in the OR the recovery unit was "backed up" and so Skyler was monitored longer in the OR and then sent to recovery THEN at 7:30ish finally sent down to us in his room. He's cozy comfy passed out sleeping...Already has had his bed changed once (yOR didnt put him in pull up or cath him...ha ha)

So the "What the Heck" moment you ask...Well as you know we shouldn't be down here, we should be counting down the days to when we can stop turning each screw twice a day which would be June 6th. But instead we had an appt last week that showed somehow the right side had malfunctioned and hadn't progressed as the left side had. Over the weekend we continued to turn each side as told to, as nothing had changed "just in case" And yesterday I actually finally called the on call oral surgeon as Skyler's left side felt different after Saturday some time when Skyler came to me saying "ow" but I brushed it off as nothing, but yesterday he was just a mess, and I mean mess. He didn't want to leave the house and when I finally got it out of him, he told me that his chin hurt and let me give him tylenol. Seemed to help but our gut feeling was something else was wrong :( Dr told us he would look at it just in case, last thing we needed was to be here today, and on Thursday find out the OTHER side was messed up...
GOOD thing they checked. The right side (the one we thought was broken, lagging behind) must have been stuck, or not being turned correctly ?? between Thursday and today moved SO the dr then moved it out 5mm more and then removed the whole device from that side, its done, no more. (!!!!) So the other side the one that had all the progress on Thursday...well it broke, some how the front screws came out and all that growth is gone...Dr had to un-do it all and put in a new device and start from the beginning...its a little crazy. We were prepared to start over on the other side and really just wanted re assurance that the other side was just fine and not to worry. No where had we thought that we would be starting over on this side.
Dr just came in and said that yes its a set back, but Skyler is young, strong and healthy that it will catch up in no time. (SIGH) I hope he's right.
So we get to start turning the one side on Wednesday (yes we are here till then)
and then we'll be on our way. They did put in a more flexible device, not sure why now, but maybe they didn't know Skyler was so uh, "busy" so we will HOPE this works to keep pressure off where he doesn't need it, and keep us out of the hospital until this is over. (Mike and I both chuckled, at this rate they will keep us in the hospital until its done only cause they can keep tabs on MR til then...nursing what?)
Alright then. Please continue to keep him in your thoughts and wish us luck on this go round.
All our love
Casie and Skyler